Last week I had another 5 day, in hospital, Ketamine infusion in the new Epworth Hospital Geelong, my pain levels had flared up and I was due for another infusion. The new hospital opened on July 4th and it is an amazing place both in terms of the architecture, the state of art rooms and facilities. Each room has it own computer screen which you can use for ordering food or internet access in general. You order what you want and select the time you would like it delivered, the food is fantastic; I thought maybe I had landed in some sort of out of space dream place or maybe that was the drug side effects!
The down side of hospital was that my pain levels although going right down also went up again at the end of the infusion which was totally unexpected, the reason is that I over did the exercise in the hospital gym and thought I was invincible, I thought that the Ketamine would let me get away with being super human-another valuable lesson learnt -Ketamine is a powerful drug but you still need to pace! so I am home now working at resting and pacing in order to get back on track-such is CRPS.
I believe, and so does my doctor, that I am making good progress, if I look back to how I was 4 years ago I have come a long way. Although I still get severe pain flares that are hell, I am no longer as fearful of these episodes because I know they will pass, I have my coping strategies in place and the backing and support of my pain management specialist team. It is nearly 9 years since my pain started and I am still alive, walking a little bit again and enjoying life despite my limitations.
The down side of hospital was that my pain levels although going right down also went up again at the end of the infusion which was totally unexpected, the reason is that I over did the exercise in the hospital gym and thought I was invincible, I thought that the Ketamine would let me get away with being super human-another valuable lesson learnt -Ketamine is a powerful drug but you still need to pace! so I am home now working at resting and pacing in order to get back on track-such is CRPS.
I believe, and so does my doctor, that I am making good progress, if I look back to how I was 4 years ago I have come a long way. Although I still get severe pain flares that are hell, I am no longer as fearful of these episodes because I know they will pass, I have my coping strategies in place and the backing and support of my pain management specialist team. It is nearly 9 years since my pain started and I am still alive, walking a little bit again and enjoying life despite my limitations.
RSS Feed
