The down side of hospital was that my pain levels although going right down also went up again at the end of the infusion which was totally unexpected, the reason is that I over did the exercise in the hospital gym and thought I was invincible, I thought that the Ketamine would let me get away with being super human-another valuable lesson learnt -Ketamine is a powerful drug but you still need to pace! so I am home now working at resting and pacing in order to get back on track-such is CRPS.
I believe, and so does my doctor, that I am making good progress, if I look back to how I was 4 years ago I have come a long way. Although I still get severe pain flares that are hell, I am no longer as fearful of these episodes because I know they will pass, I have my coping strategies in place and the backing and support of my pain management specialist team. It is nearly 9 years since my pain started and I am still alive, walking a little bit again and enjoying life despite my limitations.